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Stepanek and Heartsongs. Jeni is a noted advocate for children's, patients', and families' needs and rights in health and education, and author of the new book "Messenger: The Legacy of Mattie J. Her B. Jeni has spoken on television, radio and in print about disability, hospice, family support, parenting, writing, motivation, spirituality and many other topics, all while battling a rare neuromuscular disease.

Her therapeutic approaches produced a tremendous poet in her youngest son Mattie, whose bestselling tomes inspired millions. All four of Jeni's children were affected by neuromuscular disease and are deceased. She also serves as the Executive Director for the Mattie J. Jeni has garnered numerous awards and honors, and has an extensive list of publications, speeches and editing endeavors.

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Stepanek Park, with their service dog, Micah. Back London London London Facts. Jeni Stepanek Jeni is a noted advocate for children's, patients', and families' needs and rights in health and education, and author of the new book "Messenger: The Legacy of Mattie J. Facebook 0 Twitter Pinterest 0 0 Likes.